The College of Optometrists

Principles of examining patients with learning disabilities

A87
When examining a patient with learning disabilities you should:
  1. make reasonable adjustments to the patient’s eye care, for example by using a range of tests and procedures that are appropriate to the needs of the patient, and
  2. seek their consent to get a briefing from a relative or carer, if necessary.
A88
If they are unable to consent, refer for advice to the section on Consent.
A89
Encourage the patient to attend with a relative or carer if they are unlikely to be able to give full and accurate details, history and the reason for visit.
A90
When examining a patient with learning disabilities you should:
  1. encourage the patient to visit your premises before their eye examination to help them become familiar and comfortable with the environment
  2. encourage the patient and carer to complete SeeAbility’s ‘Telling the optometrist about me’ form29  and bring it to the eye examination
  3. find out how the patient likes to communicate and how their disabilities affect them
  4. find out about any recent signs, symptoms or behavioural changes that might be relevant
  5. ask to refer to the patient’s health action plan or communication passport, if they have one
  6. be prepared to spend longer on the examination and to arrange repeat visits to obtain full and valid results
  7. attempt visual field assessment, even if only by using confrontation techniques
  8. use cycloplegic examination, if necessary, to determine the full refractive error
  9. use mydriasis, if necessary, to internally examine the eye
  10. give clear information to the patient or carer about the effects of eye drops
  11. record any reasons for limitations on the examination and results obtained, and
  12. consider if you need to refer the patient for further tests, for example examination under anaesthetic, or electrophysiological tests. If you decide that you do, you should involve learning disability health professionals for advice about access to health care and treatment for a person with learning disabilities.
A91
When you communicate with a patient with learning disabilities you should:
  1. talk directly to the patient, rather than their carer
  2. take time to speak clearly
  3. explain what you are doing in plain English
  4. warn the patient before you touch them, and
  5. explain and show them the equipment you are using.
A92
In England the Accessible Information Standard applies to NHS patients, including those using General Ophthalmic Services, who have information or communication support needs relating to a learning disability, sensory loss or other impairment. GOS contractors need to ensure that patients receive information in a suitable accessible format unless the provision of this would be at disproportionate or unreasonable cost. The Optical Confederation produces guidance on this,30 and SeeAbility provides information in ‘Easy Read’ factsheets.31 Practitioners in the other UK nations should also make the information they produce accessible.

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